Tag Archives: ocd

A Letter Never to be Sent

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I write for catharsis. Something about writing where I know it will eventually be seen by someone is healing for me and helps me process what I’m dealing with and going through. I recently took on a second job doing respite care with a family who has an autistic child (8) and a neurotypical child (11). The kids respond well to me, the parents seem to really like me, and working the job is really enjoyable. The downside is that they live just 3 blocks away from the building I lived in with an abusive ex boyfriend. I can feel my anxiety amping up as the bus gets closer to the stop. I literally cannot stop doing SOMEthing while I’m at their house, at the bus stop waiting to go home, walking between, etc. I worked at their house the last two nights and ended up scrubbing half their kitchen and catching up on their dishes, something completely and totally outside of my duties of respite care. On realizing that the cause of anxiety is tied to my ex, I decided I needed to write him a letter. What follows is everything I’ve wanted to tell him, but never will.

Dear KS,

When we first met, you were a charming sailor, five years older and five years wiser, or so it seemed to me. You charmed your way into my pants fairly quickly and seemed to not want to leave. You wavered between just wanting to be friends, nothing more, wanting the benefits, and wanting a partner. You convinced me to stay over at your apartment when you moved out of barracks, even though you knew I’d catch shit from my dad.

Once we were together, you resisted any inclusion in my family. You resisted any inclusion of my own friends. You would not allow my friends to come over and would not go see them, but when it came time to see your family or friends, I had to be there. You isolated me. You put a rift between me and my family. You put a rift between me and the few friends I’d managed to make.

When the going got tough, you convinced me to take the “easy out” of joining the military as an enlisted member, even though everyone else in my family was an officer. When they sent me home from Basic, you had nothing but scorn for me even though you knew how hard I worked to try to stay there.

At every turn, you shot down my ideas. Nothing I did or said or wanted was ever good enough. You took all of my dreams and you trampled them. You took my already low self esteem and flushed it down the toilet. You made me feel like I wasn’t worth anything, like no matter what I did, I wouldn’t amount to anything, like no matter how hard I tried, it would never be good enough.

You took advantage of my innocence. You made it seem like it was normal to get blackout drunk on a regular basis. You made it seem like it was okay to wake up having sex. You made it seem like it was okay to drag me back from the bed after I’d passed out and keep going. I thought you were laughing with me, but I know now you were laughing at me. You never cared, you just wanted a toy.

You tore down my dreams and made me feel like I would never accomplish any of them. You took from me the hope that I’d get to the places I wanted to go, that I’d be able to do the things I wanted to do. And you let your friends do the same. You never once came to my defense on anything.

From the very beginning, you took advantage of my anxieties and compulsions. You knew I couldn’t handle being left alone or going to things alone, so you used that to isolate me. Even when we were with your friends or your family, you never welcomed me to them, I was always an outsider. You knew that I couldn’t leave a mess to sit, so you never once lifted a finger. It didn’t seem to matter to you how hard I worked to cook and clean and make as much money as I could, there was always something you found undone, always something that needed attention, always something I’d done wrong. Even when I finally snapped and stopped doing the dishes, something I had done compulsively and meticulously for close to a decade, you didn’t lift a finger. It never seemed to dawn on you how infuriating it was to spend hours tidying and cleaning the apartment only for you to tear apart a gun in the first 15minutes of being home and leave bits and screws and tools all over the living room, which I knew you would chastise me for not cleaning the next day.

You betrayed my trust. When we met, you told me that you’d been cheated on. You told me that you didn’t want to make anyone else feel the way you felt. You told me that you could never cheat. I believed you. I trusted you. Near the end of our relationship, when I felt us drifting apart, you spent those weekends in the other city. I know you were hanging out with girls. I know that at least one of those girls was your ex. I know that one of those girls ended up being your partner after I left. When you announced the pregnancy and due date on facebook, I had to remove you as a friend. You’d insisted that you didn’t want kids, but really that was me, right? I did the math. Your son was conceived when we were still living together, a month before we broke up. You cheated on me, you got her pregnant, and you decided that living together and raising the kid would be best.

You broke me. It’s been 7 years since I last saw you. It’s been 7 whole years and I still hurt every time the thought of you bubbles up. The streets we lived on are still hard for me to go down, I try not to look when I need to. My anxiety bubbles up whenever I end up in the neighbourhood we used to live in. There’s good things, good people there, that I want to see and do, I can’t because you are still there in my mind. It’s been 7 years since we last lived together and I still get bubbles of anxiety over the dishes and the cleanliness of my home, when these things used to be completely manageable. You’re the reason why my anxiety over the dishes went from “dishes not being clean” to “needing to clean dishes.” It may not seem like a big difference to you, but it is huge. You’re the reason I have mould growing in the kitchen on a regular basis and have for the last 7 years.

Your son is in grade 2 this year. Congratulations on having an offspring. You took that dream from me. If I’d had a kid with you, at least I would have been able to have a kid of my own. It’s been so long and life’s winding path has taken me so far that it looks like I won’t ever be able to have a kid at all.

You took so much from me and you never once gave me anything.

I don’t hate you, I don’t want to see you burn or anything. I just don’t want to see you ever again. I don’t want to cross paths with you. I don’t want to find out if your life ended up happy. I don’t want to know if you changed, even though I know you probably did, everyone does.

I don’t regret dating you. You taught me many valuable lessons. Lessons about limits. Lessons about tolerance. Lessons about recognizing abuse and isolation. Lessons about who makes a good friend and who doesn’t. Lessons about seeing the signs of unfaithfulness. To regret would be not recognizing these lessons I learned.

I just wish I hadn’t learned them.

I wish I hadn’t needed to learn them. I wish that when we were together, you could have been kind. I wish you would have listened. I wish you would have taken my mental health into consideration and done something to help it instead of making things worse. I wish you could have supported me instead of bringing me down. I wish you could have been honest with me, even when the honesty was tough.

I hope you’re all those things and more for your family. I hope that you figured shit out. I hope that you didn’t screw things up for them. They deserve better than what you gave me.

I hope you learned what you needed to.

Sincerely,
N

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More Appointments

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Today, I saw my GP. I got to ask for a referral to get a diagnosis for some kind of a-neuro-typicality. I’ve known for a long time that I’m not neuro-typical, but I haven’t felt the need to get a diagnosis for it. Some of my past therapists and psychiatrists have suggested that I might have ADD, ADHD, sensory processing issues, OCD… My last psychiatrist did a brief assessment between me and my mom and told me that it was very likely that I fell on the Autism Spectrum (the “Asperger’s” end), but that he wouldn’t give me a diagnosis.

So, today, I had a thorough talk with my GP about the potential diagnosis, the first steps in the process, and why I’m seeking an answer now of all times. Despite living in the land of “free health care,” the diagnosis is going to come out of pocket for me. I’m okay with that, in the long term, I feel like I’ll save money. I’m seeking the diagnosis because I intend on returning to school. I know that I don’t do well in a university classroom, and I want to change that. I feel like having a diagnosis and answers about what can help me, will enable me to get the assistance and accommodations I need at university in order to succeed. It may cost a bunch to get the diagnosis, but in the end, I’ll save money by actually completing my courses instead of failing them and ending up with a higher earning potential.

Tuesday (two days ago), I had a different appointment. I had my intake with the local sexual assault clinic. I don’t know if I’ve talked about this in past posts, I don’t read my post history. I was in an abusive relationship for two years fresh out of high school. My first sexual encounter (in grade 12) was coerced. When I was a live-in nanny and doing everything I could to escape the abusive household I worked for, I spent a lot of time at the bar. One of those nights, I didn’t go “home” and ended up spending it with someone I thought was a friend, who raped me.

I’m dealing with a lot of anxiety and emotion lately and I feel like I could really make use of the clinic’s group courses that they offer to deal with everything that’s coming to light right now. However, I’m not sure that counselling with the center is what I need because so much of what I’m dealing with is life-long, not just what’s gone on since sex became a part of my life.

Self-harm is one of those things that pops up as a life-long issue. I have three potential earliest memories. 1: A dream, very vivid, thought it was real life, and related it to my family on waking as “yesterday” until I was corrected. 2: Sitting in the stroller beside a brick wall, trying to work out how the buckle functions so that I can escape and go play. 3: Sitting on the top bunk of my sister’s bed, with a hammer I had stolen from the garage, hammering at my knee trying to break my kneecap. I cried when I couldn’t do any damage. I had a plan for if I had succeeded to “fall” off the bunk then claim I had fallen and that’s how I broke my knee.

This stands out because it’s a clear thought, clear plan, and a distinct memory. However, there’s nothing in my head for before this (all three of these things happened within a year of each other, if not closer together). Self-harm is one of those things that doesn’t just spontaneously appear. There has to be a reason, a why, a cause. You don’t just wake up and decide “oh, I’m going to do permanent damage to myself.” Something has to happen to you first. One group that’s more at risk for self-harm is those who are LGBT, of which I am both G and T (gay and trans), but at that age, I didn’t know or have any inkling of either. It would be years after this age before I started really expressing frustration about gender expression. Self -harm typically doesn’t start to show up until late childhood/early teens, and this memory is definitely from when I was no more than 3.

All this boils down to a question that popped up when I was hanging with a friend, refocusing, after the intake meeting:

Did anything happen to me (and possibly my sibling) when I was quite young that I just can’t remember? Does my sibling remember?

Present Knowledge Out of the Past

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Fair Forewarning: This post deals with intense emotional/physical trauma and abuse

The last two weeks, last three weekends, I have not so much as stepped outside my comfort zone as leaped outside it.

Two weekends ago (night of July 1st), I agreed to stay late in town to watch the fireworks, then go to a dance and stay over at a friend’s house. I have never gone to an adult dance or club before. And have basically never slept over at someone’s house as an adult (outside of relationships), despite several attempts at it.

Last weekend was Pride. My friends convinced me to march in the parade. I have never seen the parade, never gone to any pride events and certainly never marched before. Knowing how I work, I convinced myself to go to another dance on Saturday night and stay over at (the same) friend’s house then go to the march together. On Saturday when I was getting ready to go, I got a phone call saying the bloodwork I’d done first thing in the morning had come back and the numbers were off which meant I needed to see my GP ASAP. I had only just given myself my first low-dose of testosterone at the time. Later, at the dance, I ended up hanging out mostly with two guys who I had just met, dancing, and chatting. The night at my friend’s house went fine, and we got to the parade on time. However, after parting ways (he was marching with a different group), I couldn’t locate my group. I walked the length of the parade and asked for help, but no one could help me. That drove me to actually make a phone call, something I only very rarely do, to a friend who equally dislikes phone calls. I finally met up with my group, and that friend, and realized that I was in the middle of a full blown anxiety attack.

My last anxiety attack, and my first one (only ever had three) were in the first half of my four months of no sleep, three years ago.

I did the march, I couldn’t not. My friend I spent the night with had my backpack at his house, and my current primary support network was right there in the parade. So, I marched. At the end, where the celebrations were, I told my friends that I needed to be with them in some quiet spot for a little bit. We ended up sitting for close to two hours before I was okay to move around again. After that, the day went well.

The fallout has been beyond imagination.

The disassociation I experienced with the risperidone had far reaching effects. I’m still working on putting all the pieces together of what changed and what I lost and what needs finding again. I found one of those pieces at Pride last weekend and I never knew I’d lost it.

The anxiety attacks I had three years ago were paired with a heightened general anxiety due to lack of sleep and lack of control over my general life situation. But, they were isolated.

The anxiety attack I had last weekend opened a door in my mind to realizing what anxiety actually feels like. That door stayed open and I realized that I live my life on a daily basis just sitting at the edge of anxiety.

I’ve spent the last week trying to work through it and process why I’m feeling the way I’m feeling. Certainly, I shouldn’t feel anxious about getting on a bus, something I do 4-10 times a day every day, but this week has taught me that I do. One of my coping mechanisms, one of my ways of processing things, is to have conversations. I will end up having the same conversation over and over and over again until I’ve completely exhausted all the people I can confide in so I can try to deconstruct everything that happened and everything that I’m feeling. I’ve spent my week in conversations.

Which brings me to this weekend and some of my big eye-openers about why I feel the way I feel.

On Thursday, I went to dinner with a friend. We had initially bonded over some awkward experiences with one of our mutual friends, but are working on expanding our friendship beyond that. Our conversation inevitably moved to the trauma of our lives. I ended up sharing one story that I’ve only told a handful of people. When I did, he told me that he knew immediately that was why I was having issues spending the night at someone’s house. After he and I parted ways, I shared the same story with my safe person that I marched with (the one I made the phone call to). He told me that he knew I was a victim of sexual violence, but didn’t want to pry. On Friday, I spent some time with the safe friend, his girlfriend, and another friend of ours. They convinced me to spend the night at the safe friend’s house so I could go do some construction work with the girlfriend and other friend in the morning. They seemed to think it would help. On the way to pick up my stuff, I told the other friend (who was giving me a ride to my house then to my safe friend’s house) the same story I’d told the first two friends on Thursday. They told me some of the ways that they did their healing and suggested a program for me to investigate to help work through what happened. If you’re not following, that’s three people in two days I told about this thing that happened. This morning, I woke up at my safe friend’s house and went to do the construction work. I lasted until noon before I had to say I was done and we all trooped home.

Four Years Ago (read at discretion)

Four years ago, I was living in an abusive situation. I was a live-in nanny for a family that did not have a healthy dynamic. They took advantage of me and my time. I was accused of not being honest about my experience and skills. I was manipulated into agreeing to stay multiple times when I tried to quit. I was so emotionally exhausted that there were several points that I broke down to tears in the middle of the day. As an escape, I rode my bike and I went to the local pub. In just 7.5 months of owning that bicycle, I put over 3,000km on it and wore the tires almost bare. I was a well-known regular at the pub and expected almost nightly from 7pm until 2 or 3 in the morning. I became friends with a very diverse group of people including a music producer, an engineer-turned-cook, and one of the local Italian Mob Bosses. I was also friends with some younger people who didn’t come nearly as regularly as I did.

One night, it was cold, icy, and I was tired and very drunk when the bar closed. I didn’t want to ride my bike home. A friend offered me somewhere to sleep for the night, said he’d take me to breakfast in the morning, then drop me off at the house I was working out of. I took him up on the offer and told him, very explicitly, “I’m not interested in doing anything, just sleep. I’m sleeping in my clothes.” He agreed that would be fine and we loaded up my bike and headed to his place.

When we got there, I realized we’d be sharing a bed. I’d been led to believe there was somewhere else for me to sleep, like a couch. Whatever, I’m adaptable. I reiterated that I wasn’t interested in anything but sleep and I was sleeping in my clothes. He wheedled and pleaded and eventually got me down to underwear and undershirt before we climbed under the covers. He asked if we could spoon and I agreed, though I wasn’t comfortable with it. He waited until I was almost asleep before he started working his hand under my shirt. I told him no, and pushed his hands away. He persisted. I asked him to stop, he persisted. I turned to tell him again, and he kissed me and stuck his hand in my underwear. He stripped me and had his way and then spooned me the rest of the night like this was an okay thing. In the morning, he woke me up to do it again. Then we got dressed and he took me to breakfast and dropped me off at the kids’ house like everything was all fine and grand.

And then he kept coming to the same bar and being friendly with me.

I kept telling myself that I should have known something like that would happen. That there’s a certain expectation when a man brings a woman to his home after a night at the bar. That I should have been more adamant in not taking off my outer clothes. That I should have just gone home instead of staying out that night.

It took two years of feeling negative feelings every time I saw one of his facebook posts to admit that it was rape. To admit that it wasn’t my fault. To admit that I was taken advantage of, assaulted. I told only three people initially. This weekend, two years later, I told three more. And now I’m telling, well, whoever reads this.

In my conversations this week, I’ve realized that a great many of my sexual/romantic relationships have had some level of abuse in them. My first two sexual partners coerced me into sex, convincing me it was something I wanted (which it was, just not with either of them). My second sexual partner (third romantic relationship of any level of seriousness) was emotionally abusive and manipulative and isolating. He played off my OCD to get me to do things and then made me feel horrible for not doing them perfectly. He slowly drew me away from my family and friends while not adding me to his own circles. My most recent romantic relationship had a certain level of coercion to it as well, to the point of twisting what I wanted into what he wanted when it came to my surgery (perhaps you remember my posts about that). When he asked for me back, I laid out certain things that could not be negotiated, that he had to agree to, that he had to accept, and he refused. One of them was that I am hard on the male side of binary, that I cannot be referred to with female pronouns/pet names, and that I need to be seen and treated as a guy. He told me that he didn’t know those things were hurtful (despite the fact that we’d talked about it the few times he did use them), and that he wasn’t gay and that he never saw me as either gender.

Finding Anxiety (mostly safer reading now)

Since Pride last weekend, I’ve realized what anxiety feels like. I’ve realized that I feel it every day. I’ve realized that it has a great many sources and there is a lot of work I need to do to bring myself back to a level of peace. I’ve also realized that I’ve lived with this daily anxiety for a very, very long time. I cannot pinpoint a single time when I have not had anxious tendencies, though some of them are certainly much worse now than they were 10 years ago when I was still in high school and before the sexual abuse.

I’ve been a compulsive picker (of scabs and skin) for as long as I can remember. My body is laddered with scars from picking and repicking my scabs and scars. I have had self-harm ideation for as long as I can remember. (This has never included suicide.) One of my earliest memories is of taking a hammer to my knee, purely to break it. I had a plan for how I would explain the injury to my parents. But I wasn’t strong enough to actually do any damage. I was 3 or 4 at the time. Since then, there have been many small successful self-harm attempts, but none needing more than a bandaid. I have had OCD manifesting in different ways since at least my preteen years. Washing the dishes was a very big problem for me for a long time (and one of my almost daily chores). There were needs to have things just right in order to actually do things, there still are. There was certain routines and rituals to using certain objects including the internet. There were obsessive tendencies to go through EVERYTHING of something (read a webcomic, beginning to end, even if it means staying up all night; read encyclopedias cover to cover, not just the entries of interest; sort through all of the photos in one location or all of the cards; look at all of the photos posted to a photo-sharing site, an impossible task that nearly broke me). There were needs to have things organized in a very specific manner (Dewy Decimal organization of my home library and, when I found it, my parent’s library).

In the last 10 years, I’ve added reluctance to engage in new situations or be in new spaces with new people. One new thing at a time, everything else must be familiar or I’m not okay with it. I have a reluctance to go over to other people’s houses, especially overnight. I’m less adaptable to any level of change unless it was rooted in something I control. And I have more obsessive thoughts circling around in my head.

Knowing what I know now about my mental-emotional state, I want to work towards finding a balance of some sort, finding some way to be at peace with my daily life. Knowing what anxiety feels like will allow me to know where my limits are and how far to stretch them. Having the friends I do around me will help me work through this in ways that are healthy, I hope.

One Year Later and a New Lifestyle

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It’s been a year and a couple months since I last posted and it seemed like now would be a good time to return. It’s odd to think about, but when there are fewer negatives in life, there’s less need for cathartic writing. Catharsis has definitely been the point of this blog and while I’m sure it has been informative for many readers, it has been an appropriate escape and thought collection for me. (Though, at this time, I am not prepared to go back and reread all that I’ve written.)

A little over a month after my last post, I had my chest surgery. It was a reduction, as had been discussed with my therapist and with my surgeon. The results have been great, as the surgeon expected, healed really well. Unfortunately (due to things discussed further down), I am not pleased with it and have scheduled a complete double mastectomy to help ease my mental health.

While I stayed at my parent’s house during the recovery from surgery (as stable a place I could possibly find in my life at the time), I did the final weaning off of the antipsychotics. There was no change in anything. There was no return of hallucinations, no change in mood or connection to the world. It was brilliant.

Near the end of my recovery, I connected with an amazing family and got a job as a nanny. In just a few more days, I will have been working with these kids for one full year. On commencement of my employment with them, I began a life-changing, well, change.

I was provided lunch, which is the same thing the kids ate, and due to certain issues around food, there was constantly a conversation about healthy eating habits. This conversation led me to become more aware of what I put in my body the rest of the week, not just at lunch time. This first inkling of awareness is what started my year of “slow healthy habit changes.”

Slow Healthy Habit Changes

Historically, I’ve tried to change my habits, change what I eat, how I exercise, everything, and it’s always flopped. Historically, I’ve tried to do it as an overnight change. This past year brought about an awareness and change of attitude. When I changed something, it was literally just one thing and it was never big. One week, I realized that I needed to eat something in the morning (I had never really taken to eating breakfast), so I started buying a chocolate and a pop which would get me through till lunch. It would take a further ten months and a further 4 changes (with several relapses) before I adopted a healthy square breakfast with an “adequate” morning beverage. (Perhaps in a couple weeks I’ll switch from hot chocolate to tea.)

I didn’t limit myself to diet either. I spent some weeks focusing on how I interacted with friends, establishing closer friendships, pursuing routine in meeting up with people, and ensuring that I was actually connected with people. I spent some weeks working on how I interacted with the outside world, from exercise to casual hellos with strangers. I spent some weeks looking inward and seeing how my house felt, not denying myself little luxuries (like spice containers or a new shower curtain) and generally making myself feel more welcome in my own space. And I spent some weeks working on how I talked to myself.

I think the biggest change, in all of what I’ve done in the last year, has been in my self talk. I see myself as someone who is able to complete things, someone who can stay on top of things, someone who can do what needs to be done. This wasn’t always the case and certainly wasn’t the case a year or two ago in the midst of my madness.

Through all of these habit changes (because they are truly habits that have been changed), I have kept a careful log of my body size and less careful log of my weight. I knew, during my year and a half on medication, that I was gaining weight, but I wasn’t aware of how much. Sometime shortly after January of 2016, I measured myself and became aware of how much I had actually gained. I weighed in at the time just over 210lbs. The last time I had been weighed (in early/mid 2014) and for the prior ~7 years, I had weighed in consistently around 150lbs. I started trying to fix it immediately, but made no great strides. Even my surgery didn’t change much and actually disheartened me to continuing with monthly measurements. But, through the healthy habit changes (a whole mind/body view rather than a body-centric view), I did lose weight, a lot of it. I am proud to say that I fit into some of the clothing I wore prior to 2015 again. At my last weigh in, I was 163lbs and I know I’ve lost more weight since then.

Transition

While it hasn’t been a key topic in my posts, it is integral to my mental and physical well-being and the key cause of my decline originally. Since the diagnosis by my psychiatrist in the fall of 2015 of hormonal insomnia, I have done a lot of reflective thinking on the implications. When I finally weaned off the sleeping pills, I found that I slept better than I had in all my memory. However, in spring of 2016, I accidentally went off testosterone. I missed one week, then another, and before I knew it, I was back to female hormone levels. While I wasn’t satisfied with the secondary sex characteristic changes yet, I was even more scared of what going back onto testosterone would do to me. Since I started working with the kids, I was keenly aware that while I managed four months of extreme insomnia well enough while working retail and attending college, I would not be able to do the same in childcare. So, I refused to restart testosterone.

With recent clarity, I’ve decided that I can’t let a little fear get in the way of things. I’ve researched hormone replacement therapy (HRT) and how it is approached for people with hormonal disorders (like PMS or endometriosis) and developed a new plan of approach alongside a nurse. Very soon (as soon as I can fill the prescription), I will be restarting testosterone, almost exactly 3 years after my first shot. Unlike my first shot, I will not be taking quite so much at once. In fact, I will be doing a very low dose weekly shot. This will slowly over the course of months or longer be stepped up to eventually get to the full dose that I was on initially. As I have the awareness of my hormonal insomnia this time, I will be able to immediately take actions to correct if things start going sideways. I feel prepared.

Going Forward

It’s funny. As you work to set your life in order, good things follow. The more I worked on my physical and mental health, the more receptive others were to me. I made more friends and engaged more, even if that wasn’t my direct intent. In the last couple months, there has been another huge shift for me. I’ve engaged more with the local Deaf community and renewed my interest in learning ASL (which is going great!). I broke up with my overseas long distance boyfriend. I’ve spent more time reading non-fiction (my not-so-secret passion). I’ve spent more time with people who are currently actively engaged in learning (undergrad, post-grad, and PhD students, as well as other general learning adults like myself). I’ve been surrounding myself with a positive and encouraging community and I’ve been thriving.

A hard lesson that has taken far too long to learn is that it doesn’t matter what you plan for, life likes to throw curve-balls. As much as I would love to become fluent in Dutch, move to Europe (Netherlands maybe) and attend university there, then find a nice man to marry, have kids, find a great job/career working with kids, and eventually retire to luxury, I have to accept that that’s likely not to happen. Instead, I’ve created a new plan.

I am still saving as if I’m moving in a year and a half. I don’t see that as a bad thing even if I don’t actually end up moving. I’m not denying myself the close personal connections that I have with people locally (including one that may turn into an actual relationship, eek!). And I’m actively pursuing to better myself and my education.

Part of that last point is a request for referral for a neuropsych evaluation for Autism/ADHD/other stuff. I have long since known that I am not neurotypical. In fact, my last 6 or 7 psychs and therapists have said as much, point blank, to my face. Several friends who work closely with or know people who are autistic have told me that I fit the mold for the mild end of the spectrum. I’m also keenly aware that I do not thrive in a university setting. If I’m intending to return to school, then I need to do something to ensure my success. I see getting an evaluation as a key component to that. I’m also hoping that a diagnosis will allow me to find better coping and management skills in the rest of my life, not just at school.

Another part of that point is the keen knowledge that one of my largest failings in school has been in notes and reports. I’m working on that, combating it on my terms, outside a classroom, and in a setting where I can work to success with no possibility for failure. I love non-fiction books, and actively seek the ones on topics of most interest to me. I have also picked up a notebook and am taking notes, now, on the books I read. Facts that jump out at me, things that seem of key importance, therapies that could use further research for understanding (hey, I like reading about kids and special needs). I plan in the future to write several research papers on questions of my own choosing and topics of my own interest, with review from friends who have an academic background and will be able to help me build my skills. I’m also intending on spending several weeks/months learning a specific developmental theory that keeps jumping out at me as something I can’t wrap my head around just yet, but I know will show up in whatever line of courses I end up pursing. My hope is that I will build, over the next 2+ years, a foundation of skills and knowledge that I can build on once I do return to school, enabling me to succeed even if I don’t end up getting a diagnosis.

To Conclude

My readers, life is incredible, amazing, glorious. Life is what you make of it. However bad and horrible things may be right now, there is always the potential for it to improve, even in small ways. And who knows, if there’s one small improvement here or there, perhaps in several months you’ll look back and see you’ve ended up making huge strides.

Thank you for reading. (Potential future updates to follow, as needed.)

Baby Steps

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I saw my therapist on Thursday and talked to her about a lot of things including the anxiety that I’ve been feeling.

I’ll catch you up because I haven’t fully talked about it here yet. When I get anxious, it’s because I’m worried about doing something wrong, usually something that affects other people. When I’m alone or in certain situations, especially situations where I’ve done something wrong in the past, I find myself looping through what I did wrong. Example: At work a couple weeks ago, I was told that some of my coworkers thought I was making up rules and I needed to stop. I wasn’t making up rules, but was communicating ineffectively. Now, when I’m at work or thinking about work, I think about all the things I’ve said and done that might be construed as rules and how they’re wrong and made up. Getting out of the loop is hard and usually takes a lot of effort and focusing on something else, even if I remind myself that the damage is done and it’s in the past and there’s nothing more I can do.

Non obvious signs of this anxiety (that I’ve had for a long time) include OCD type behaviors. When I was a child and young adult, this included organizing the book shelves by author’s last name. I would spend hours on this one task and it would require taking the whole bookshelf down if someone put one book in the wrong spot. Another behavior was dishwashing. It would take more than three hours to wash the dishes for a simple dinner for three people; something that should take 20 minutes. Other ones that have shown up include an obsessive need to always wear a hat and to not step on sidewalk cracks. These behaviors come and go and it’s hard to describe the feelings driving the needs to do these things, they just need to be done. Right now, I don’t have any that I can pinpoint.

So, I talked to my therapist about the anxiety and the behaviors and she thought there was a link to OCD and anxiety. I see both her and the psych this coming Thursday. The therapist wanted my permission to talk to the psych about all that I’ve talked to her about and I gave it, gladly. I want the psych to know everything too, how else to get a diagnosis and proper treatment, but with the no words day last time I saw her, it was hard to explain what I could to the therapist.

I personally think that the hallucinations were triggered by the complete lack of sleep, and the insomnia by the anxiety. Anxiety might also explain why the sleeping pills weren’t working.

The hallucinations are essentially gone. I’m attributing that to the risperidone and am truly grateful. They were more than scary. Unfortunately, I’ve noticed in the last week or so that I’ve not been getting as much sleep. It’s been harder and harder to fall asleep (taking upwards of 2 hours or more some nights) and in the last few days, I’ve been waking earlier. I’m still getting 5 hours on a bad night and 8 on a good one, but there’s fewer good nights and more bad nights now. (Note, the numbers are down from 7 on a bad night and 11 on a good night a few weeks ago.)

So, I see this as baby steps forward. Hopefully the therapist and psych will have a good long chat together and find some answers together before we meet next week.

Also, about the nanny job, I just got a reply back from the agency and they’re apparently not taking any new nannies on just now. Frustrating, but not the end of the world.